7/28: Needle Change
The Huber Needle change went without a hitch today and thankfully without much, if any, pain. Taking out the old one seemed to be more traumatic than puting in the new one. Regardless, nurse Louise took care of business and did a great job with both (she knew I wasn't happy about the previous attempt). Of course Leo was scared and crying, but I didn't see or hear the kind of pain that was evident last time. The combination of enough Emla Cream and not too many people was obviously good enough because I didn't even try to pass-out.
Leo was in a decent mood today, but woke-up 3 times last night... and then we overslept and woke-up at about 8:45! Our sleep "schedule" is really messed-up as evidenced by a nap we took starting at about 4:30pm. While Granpa was putting-in overtime with cooking and laundry, Leo and I woke-up at about 8:30pm in a big puddle that made him wet, literally, from head to toe! The antineoplastons make him so thirsty he drank about 11 ounces of water and juice within a few minutes. That's a lot of intake and I'm getting used to the puddles. He didn't overeat and finally fell asleep just a few minutes ago.
Leo has started saying and waving hello and goodbye to Jaga (pronounced Yaga), one of the receptionists at The Clinic. His swallowing seems to have gotten a little better because he definitely doesn't cough as much when he eats or drinks. He's starting to use his left hand more, but still doesn't like to stand and there's still no walking. He also shows the nurses that they need to use his right leg for measuring blood pressure; which finger he feels like sticking into the little pulse oximeter that measures oxygen saturation in the blood; and that his right arm is best for measuring temperature. Of course the nurses appreciate his efforts at making their lives easier. He still doesn't like being weighed, because first I weigh the two of us together and then ask whoever is next to us to hold him while I weigh myself (don't ask), but he'll probably get used to that as well.
Hopefully we'll go for a drive to the Johnson Space Center tomorrow since nothing much should happen at The Clinic.
Leo was in a decent mood today, but woke-up 3 times last night... and then we overslept and woke-up at about 8:45! Our sleep "schedule" is really messed-up as evidenced by a nap we took starting at about 4:30pm. While Granpa was putting-in overtime with cooking and laundry, Leo and I woke-up at about 8:30pm in a big puddle that made him wet, literally, from head to toe! The antineoplastons make him so thirsty he drank about 11 ounces of water and juice within a few minutes. That's a lot of intake and I'm getting used to the puddles. He didn't overeat and finally fell asleep just a few minutes ago.
Leo has started saying and waving hello and goodbye to Jaga (pronounced Yaga), one of the receptionists at The Clinic. His swallowing seems to have gotten a little better because he definitely doesn't cough as much when he eats or drinks. He's starting to use his left hand more, but still doesn't like to stand and there's still no walking. He also shows the nurses that they need to use his right leg for measuring blood pressure; which finger he feels like sticking into the little pulse oximeter that measures oxygen saturation in the blood; and that his right arm is best for measuring temperature. Of course the nurses appreciate his efforts at making their lives easier. He still doesn't like being weighed, because first I weigh the two of us together and then ask whoever is next to us to hold him while I weigh myself (don't ask), but he'll probably get used to that as well.
Hopefully we'll go for a drive to the Johnson Space Center tomorrow since nothing much should happen at The Clinic.
posted by Yury at 10:55 PM
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