9/5: It Never Ends, Does It?
Well, a bunch of relatively small things are all going on at once, but they're slowly piling up. Leo's potassium level is at the lower end of the scale, which is beginning to worry the doctors in Houston and our pediatrician. We're doing our best to give him the potassium-richest foods he'll eat, including soy milk that he seems to drink by the gallon, to get the level up. It hasn't been this low and we have no idea why at this point. His red blood counts are also at the lower end of the scale, so we're doing the same here to get those up. Another blood test tomorrow, so we're praying for something good. I guess the potassium can be helped with supplements, but I don't think they make one of those for red blood stuff...or maybe they do?
Marina's been wiping and rinsing Leo's mouth with the nystatin for the thrush, which is hardly even noticable. We were told to throw-away Leo's old toothbrush, get new ones, and not use them too long because they can re-infect. Turns out that swallowing the nystatin is actually a good thing because if this is on his lips and in his mouth, it's also most likely in his throat. Good grief!
And if that's not enough, his little butt is pretty red. We've been putting calendula cream on it, but it isn't doing too much, so we've upgraded to the thick, but creamy Desitin. Sound yummy? No. It's for his butt.
On a brighter note, the folks at HIT Entertainment, Veronica and Tracey specifically, came through with an amazing box of presents for the kids. This is the company that markets and distributes various kid characters and brands, which I think covers PBS Sprout for the most part. They sent Thomas the Tank Engine and Bob the Builder toys, videos, games, and even vitamins! I originally asked them to send a warehouse-full of stuff to the Burzynski Clinic in Houston for the kids down there and I guess we got some leftovers. Thanks HIT Entertainment -- take a look at the list of kids on this page. I'm sure they'd love some stuff too!!!
Marina's been wiping and rinsing Leo's mouth with the nystatin for the thrush, which is hardly even noticable. We were told to throw-away Leo's old toothbrush, get new ones, and not use them too long because they can re-infect. Turns out that swallowing the nystatin is actually a good thing because if this is on his lips and in his mouth, it's also most likely in his throat. Good grief!
And if that's not enough, his little butt is pretty red. We've been putting calendula cream on it, but it isn't doing too much, so we've upgraded to the thick, but creamy Desitin. Sound yummy? No. It's for his butt.
On a brighter note, the folks at HIT Entertainment, Veronica and Tracey specifically, came through with an amazing box of presents for the kids. This is the company that markets and distributes various kid characters and brands, which I think covers PBS Sprout for the most part. They sent Thomas the Tank Engine and Bob the Builder toys, videos, games, and even vitamins! I originally asked them to send a warehouse-full of stuff to the Burzynski Clinic in Houston for the kids down there and I guess we got some leftovers. Thanks HIT Entertainment -- take a look at the list of kids on this page. I'm sure they'd love some stuff too!!!
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