8/2: Routine
Last night Leo decided to have some fun and sleep with Granpa. Of course he woke-up in the midle of the night, thirsty, hungry, and wet. Granpa took care of business and Leo decided to leave him alone and sleep with me. He woke-up again at either 4 or 5am -- I can't even remember -- and, well, repeated his routine. Granpa just asked if he wanted to sleep with him today but nope, not tonight.
Yesterday The Clinic decided to do a blood culture, not just a plain blood test. This was done as a precaution to infection. Fortunately today the results came back negative. Good, but not final. Only after 72 hours of negative results (i.e. no bacterial growth) can Leo be classified as infection-free. Back at home when he got the infection, the culture was positive almost immediately, so today's negative result is promising; 24 hours down, 48 to go. Today one of the small blood tests was required and, again, thank G-d for TPA, which worked in only 15 minutes. Today was also the first time I did an "independent" bag change of A10, in our room. I was very nervous and took about twice as long, but the bag looked good, without any air bubbles, so treatment continues.
We met a family from Italy that came to The Clinic for their 9 year-old daughter's treatment. They don't speak a word of English and have a relative from Connecticut translating. Granpa offered to drive them to Whole Foods or where ever they want to shop because they seemed a little lost, but they probably fell asleep jet lagged.
I also started a new "routine" with Leo. I start a slideshow of of recent family pictures on the laptop here, as well as on the Yahoo site, and we watch it over and over again (between showings of "I Love Big Machines 2" or the "Mega Machines" DVD with bulldozers, monster trucks, and tanks). He squeals with joy when he sees Anna, Nina, and Mom!
Leo's dose of antineoplaston AS2-1 is within therapeutic range now and A10 is increasing and almost there, so we're actually starting to talk about our departure! Our estimated time of departure is Wednesday August 9, with Tuesday being our "check-out." Of course that's very exciting, but also provides for plenty of anxiety.
Yesterday The Clinic decided to do a blood culture, not just a plain blood test. This was done as a precaution to infection. Fortunately today the results came back negative. Good, but not final. Only after 72 hours of negative results (i.e. no bacterial growth) can Leo be classified as infection-free. Back at home when he got the infection, the culture was positive almost immediately, so today's negative result is promising; 24 hours down, 48 to go. Today one of the small blood tests was required and, again, thank G-d for TPA, which worked in only 15 minutes. Today was also the first time I did an "independent" bag change of A10, in our room. I was very nervous and took about twice as long, but the bag looked good, without any air bubbles, so treatment continues.
We met a family from Italy that came to The Clinic for their 9 year-old daughter's treatment. They don't speak a word of English and have a relative from Connecticut translating. Granpa offered to drive them to Whole Foods or where ever they want to shop because they seemed a little lost, but they probably fell asleep jet lagged.
I also started a new "routine" with Leo. I start a slideshow of of recent family pictures on the laptop here, as well as on the Yahoo site, and we watch it over and over again (between showings of "I Love Big Machines 2" or the "Mega Machines" DVD with bulldozers, monster trucks, and tanks). He squeals with joy when he sees Anna, Nina, and Mom!
Leo's dose of antineoplaston AS2-1 is within therapeutic range now and A10 is increasing and almost there, so we're actually starting to talk about our departure! Our estimated time of departure is Wednesday August 9, with Tuesday being our "check-out." Of course that's very exciting, but also provides for plenty of anxiety.
posted by Yury at 8:06 PM
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