9/6: A Better Day
Although today started a bit on the tough side, Leo's day seemed only to get better. In the morning home nurse Candice did a fine job getting blood on the first try, but with a little help from us. I was holding Leo the entire time and had a good chance to peek inside his mouth to see the thrush firsthand. Oh my goodness. It's hard to really describe, so I found a very graphic image here. DO NOT CLICK IF YOU HAVE ANY DOUBTS ABOUT SEEING THIS: http://www.lib.uiowa.edu/hardin/md/cdc/6053.html. I hate to say it, but I think Leo's is actually worse than the large picture. Nurse Marilyn, in Houston, told me today that thrush causes burning when eating or drinking anything warm. Everything started to come together, since Leo's hasn't eaten much over the past couple of days, probably because the warm food burned and hurt. As soon as we heard that, we stopped heating Leo's food and have been giving him stuff straight from the fridge and he's been eating. Fortunately this infection should go away very soon.
My cousin Irina stopped by today to look at Leo's butt and see what's going on down there. She's a nurse in oncology at Lutheran General. Yes, the same Lutheran General. We seem to have a love-hate relationship with that hospital. Anyway, she also thought it was just a diaper rash, so we're continuing to smother Leo's butt with diaper cream.
I was very nervous about today's blood test. Something gave me a bad feeling all morning. Fortunately, that feeling went away the moment I got the results. Sodium is ok; potassium is too good (almost too high); red blood stuff is getting better. All in all, a fine result, so that made it a little easier to concentrate at work.
Now, the most promising observation. When I got home, Leo wanted me to hold him, which I did. He's been pretty "floppy" for a little while, like a newborn whose head and entire body need to be supported all the time. I sat on the couch and held him and noticed that he had both hands on my chest, supporting himself. It reminded me of the time when he was just a baby, doing his first "push-up" from the floor, holding himself up. Although it was only for a few moments, it lasted long enough for me to realize what was going on and point it out. This was very exciting! Afterwards, he wanted to eat some of Granma's cabbage pie, which is much tastier than it sounds. Finally, he didn't mind posing for a picture. He really was much happier than he looks (that's his pump above him):
My cousin Irina stopped by today to look at Leo's butt and see what's going on down there. She's a nurse in oncology at Lutheran General. Yes, the same Lutheran General. We seem to have a love-hate relationship with that hospital. Anyway, she also thought it was just a diaper rash, so we're continuing to smother Leo's butt with diaper cream.
I was very nervous about today's blood test. Something gave me a bad feeling all morning. Fortunately, that feeling went away the moment I got the results. Sodium is ok; potassium is too good (almost too high); red blood stuff is getting better. All in all, a fine result, so that made it a little easier to concentrate at work.
Now, the most promising observation. When I got home, Leo wanted me to hold him, which I did. He's been pretty "floppy" for a little while, like a newborn whose head and entire body need to be supported all the time. I sat on the couch and held him and noticed that he had both hands on my chest, supporting himself. It reminded me of the time when he was just a baby, doing his first "push-up" from the floor, holding himself up. Although it was only for a few moments, it lasted long enough for me to realize what was going on and point it out. This was very exciting! Afterwards, he wanted to eat some of Granma's cabbage pie, which is much tastier than it sounds. Finally, he didn't mind posing for a picture. He really was much happier than he looks (that's his pump above him):
posted by Yury at 8:42 PM
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