10/2: Leo Gets a Feeding Tube
After another visit by the gastroenterologist this morning, as well as Dr. Kroin, a physical therapist, and 3 infectious disease doctors, we decided Leo needed a feeding tube. The best option right now was the nasogastric (NG) tube because it can stay in for about a month and requires no surgery. The procedure to put it in took about 30 seconds, so his discomfort really was minimized. It was done without sedation, though, because the associated risks were much greater than the discomfort. So Leo now has a thin plastic tube sticking out his nose. This was the best option because while we're reducing his decadron and fighting thrush, he can get all the nutrition, medicine, and supplements he needs without any discomfort. He can even get back on treatment once we find out the approximate amount of liquid he needs for his dose. Besides, he can still eat and drink.
Unfortunately an endocrinologist didn't stop by. We wanted to talk to one of these hormonal experts to see what else, if anything, we can do about reducing Leo's decadron. On this note, Leo moved his legs today. So now we've seen movement in his arms, legs, and toes. Leo also unclenched hist fists and relaxed his fingers for a while today. These are all functions decadron had taken away, which are now finally returning.
Finally, I received a signed copy of Leo's MRI from Burzynski. It showed no change in size and less enhancement (a good thing). Considering Leo had been off treatment for almost 3 weeks, this is good news.
Unfortunately an endocrinologist didn't stop by. We wanted to talk to one of these hormonal experts to see what else, if anything, we can do about reducing Leo's decadron. On this note, Leo moved his legs today. So now we've seen movement in his arms, legs, and toes. Leo also unclenched hist fists and relaxed his fingers for a while today. These are all functions decadron had taken away, which are now finally returning.
Finally, I received a signed copy of Leo's MRI from Burzynski. It showed no change in size and less enhancement (a good thing). Considering Leo had been off treatment for almost 3 weeks, this is good news.
posted by Yury at 7:26 PM
1 Comments:
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