8/10: Everything in Medicine is About the Money
We saw Leo's pediatrician, Dr. Kroin, today. Leo wasn't excited though. Afterwards I tried to schedule a home health place to send a nurse to us Mondays, Wednesday, and Fridays to do a blood draw from Leo's port. I lost track of the number of companies I called! The vast majority said they don't work with children, which I find hard to believe. The rest claimed that unless we purchase their supplies and/or use their IV infusion services, they wouldn't send us a nurse! All seemed shocked that I was calling, instead of a hospital person. So I finally called the 2 companies with whom we've dealth in the past: Coram (used for the antibiotics) and OptionCare (scheduled for us just after Leo got the port).
Coram checked and checked and finally the scheduling supervisor called me back past 6pm to tell me they won't do this because we aren't purchasing or using the IV infusion services. OptionCare started the same way, but when I told them that we never purchased anything from them, but still had a nurse offer to come (this was the smoker that didn't show-up), they checked their computers and said they'd send a non-smoker starting tomorrow. Incredible.
The one place that was reasonable today was the lab at Glenbrook Hospital. I came there, registered Leo for a standing lab order, a copy of which still has to be brought by the home health nurse when dropping off the samples, and left within about 5 minutes.
We're still trying to figure-out a reasonable schedule and routine for Leo. He hardly slept last night and kept Marina up most of the time. We've kept him on treatment the entire day and had our first call with Marylin from The Clinic. One problem that's reared its ugly head already is Anna got runny noses and sneezed all over the place. So we have our first taste of separating the girls from Leo. He was ok with this, but they wanted to be near him and help him. They know he has "an owie" and want to give him "medicine," water, and juice to make him better. They just want to be around him.
Coram checked and checked and finally the scheduling supervisor called me back past 6pm to tell me they won't do this because we aren't purchasing or using the IV infusion services. OptionCare started the same way, but when I told them that we never purchased anything from them, but still had a nurse offer to come (this was the smoker that didn't show-up), they checked their computers and said they'd send a non-smoker starting tomorrow. Incredible.
The one place that was reasonable today was the lab at Glenbrook Hospital. I came there, registered Leo for a standing lab order, a copy of which still has to be brought by the home health nurse when dropping off the samples, and left within about 5 minutes.
We're still trying to figure-out a reasonable schedule and routine for Leo. He hardly slept last night and kept Marina up most of the time. We've kept him on treatment the entire day and had our first call with Marylin from The Clinic. One problem that's reared its ugly head already is Anna got runny noses and sneezed all over the place. So we have our first taste of separating the girls from Leo. He was ok with this, but they wanted to be near him and help him. They know he has "an owie" and want to give him "medicine," water, and juice to make him better. They just want to be around him.
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