8/7: Back on Treatment
Thankfully today we spoke to Dr. Weaver. He looked at and touched Leo's chest where the infiltration had occurred and thought there was very little, if any, swelling. So in went the needle, followed by some freshly-brewed antineoplastons. Almost immediately Leo became thirsty and by the end of the day it was as if he never skipped a beat. His mood quickly became noticeably better as well. Leo laughed and smiled and drank and drank and drank. Phew...
We also met with Marylin, who is the nurse that's going to call us every day, including weekends and holidays, to check-up on Leo. The antineoplastons will be ordered through her because one of her questions will be inventory. We're going to have to keep track of everything. For a while, Leo will have to have 3 blood tests each week, per FDA rules. He'll need a monthly physical exam with Dr. Kroin and then periodic (every month or two) MRIs. We'll have a find a reliable and reasonable lab as well, because within 24 hours the blood test results need to be faxed to Dr. Weaver, to Dr. Kroin, to us, and to anyone else who's interested.
Tomorrow is discharge, which hopefully means another sighting of Dr. Burzynski, himself, and Dr. Szymkowski, whom we haven't seen in a while. It's hard to believe we've been here over 3 weeks. In preparation, Dr. Weaver performed a neurological exam and compared it to the first one, when Leo first arrived. He said Leo's strength was quite good -- as good as before -- and his symptoms did not get worse. I guess this is good news.
We've started packing and already have several smallish boxes with toys and medical supplies. Wednesday is quickly approaching and we're looking forward to going home. I think this was time well spent and we made the right decision to come here.
I finally found the PET scan CD and posted pictures to the date of the scan.
We also met with Marylin, who is the nurse that's going to call us every day, including weekends and holidays, to check-up on Leo. The antineoplastons will be ordered through her because one of her questions will be inventory. We're going to have to keep track of everything. For a while, Leo will have to have 3 blood tests each week, per FDA rules. He'll need a monthly physical exam with Dr. Kroin and then periodic (every month or two) MRIs. We'll have a find a reliable and reasonable lab as well, because within 24 hours the blood test results need to be faxed to Dr. Weaver, to Dr. Kroin, to us, and to anyone else who's interested.
Tomorrow is discharge, which hopefully means another sighting of Dr. Burzynski, himself, and Dr. Szymkowski, whom we haven't seen in a while. It's hard to believe we've been here over 3 weeks. In preparation, Dr. Weaver performed a neurological exam and compared it to the first one, when Leo first arrived. He said Leo's strength was quite good -- as good as before -- and his symptoms did not get worse. I guess this is good news.
We've started packing and already have several smallish boxes with toys and medical supplies. Wednesday is quickly approaching and we're looking forward to going home. I think this was time well spent and we made the right decision to come here.
I finally found the PET scan CD and posted pictures to the date of the scan.
posted by Yury at 10:06 PM
0 Comments:
Post a Comment
<< Home