8/15: Increasing A10 Dose

Based on yesterday's blood test, Marylin today said that we should increase Leo's dose of A10 to 195mL. That means only 15mL to go until he reaches the maximum of 210mL! She said they want to reach the max dose on this bag first and then move onto the second bag (of AS2-1). That dose is currently 12.5mL and the maximum is 19mL, so it's almost there as well. It also looks like we didn't get enough of the AS2-1 bags, since there are about 13 of A10 and only 3 of AS2-1. Will have to order some, stat!

More fun with home health. Yesterday the ER doctors told us to change Leo's dressing (tape and gauze over the Huber Needle) daily, the home health company said they could have a nurse come for about a week, which is the anticipated duration of these daily changes. Candice came at 8am today for this and proclaimed she was only here to teach us how to do this and that she wouldn't be coming daily. She just wants to come for the blood draws. Given our completely chaotic life right now, I set her straight and told her that we'd be glad to watch, but she would be changing his dressing, not us. After all, isn't that her job!? Also, even though it's just replacing a big chunk of tape on his chest, neither Marina nor I want to make Leo any more uncomfortable than he already is -- let her be associated with that. Fortunately it didn't take long at all to convince her, but it was still an annoying way to start the day.

Speaking of schedule, Marina and I now divide all the work as evenly as we can. We take turns getting up every 3-4 hours at night, whenever Leo wakes-up for a drinking binge. I take care of hiding the 2 decadron pills (4mg and 1mg) in something edible and ensuring Leo eats it, while Marina makes sure he takes the antibiotic. All the Grandparents are still working overtime and helping every which way possible...