10/3: The Truth Comes Out
Today, a real live doctor admitted that virtually all of Leo's current symptoms, including the swelling, muscle soreness and stiffness, joint soreness and stiffness, weakness, susceptibility to infections, inability to move his jaw, high blood sugar (onset diabetes), etc. are from decadron! Dr. Ghai, a pediatric endocrinologist, told us. Finally, a (medical) person not afraid of decadron.
Further, she said that Leo's dose was, and remains, too high. We need to speed-up decreasing it. No longer will we need to decrease 1mg per week. We should be able to decrease every 3 days. Obviously there are more details to be worked-out, including how much to decrease, but she immediately ordered a decrease today from 8mg to 7mg -- we just decreased to 8mg 3 or 4 days ago. In addition, she said she'd be happy to speak to the doctors in Houston and Dr. Barbara is always happy to speak to local doctors, so tomorrow should be a very interesting day.
Most importantly, Leo seems to be getting better. The NG tube is providing nutrition and filling his belly, which lets him relax, since he can eat without expending any energy. For now, this is a good thing. The thrush on his skin is obviously clearing-up. His diaper area looks great; the butt is still red, but otherwise a big improvement. His back is also nowhere nearly as red as it was. The infectious disease doctors cultured stuff from his skin so we should know what that is, and how to treat it, soon. His wound is also healing better and has lost its perfectly round shape after the debriding. Leo continues to move his arms and relax his fingers, so we're seeing signs of improvement all around.
Further, she said that Leo's dose was, and remains, too high. We need to speed-up decreasing it. No longer will we need to decrease 1mg per week. We should be able to decrease every 3 days. Obviously there are more details to be worked-out, including how much to decrease, but she immediately ordered a decrease today from 8mg to 7mg -- we just decreased to 8mg 3 or 4 days ago. In addition, she said she'd be happy to speak to the doctors in Houston and Dr. Barbara is always happy to speak to local doctors, so tomorrow should be a very interesting day.
Most importantly, Leo seems to be getting better. The NG tube is providing nutrition and filling his belly, which lets him relax, since he can eat without expending any energy. For now, this is a good thing. The thrush on his skin is obviously clearing-up. His diaper area looks great; the butt is still red, but otherwise a big improvement. His back is also nowhere nearly as red as it was. The infectious disease doctors cultured stuff from his skin so we should know what that is, and how to treat it, soon. His wound is also healing better and has lost its perfectly round shape after the debriding. Leo continues to move his arms and relax his fingers, so we're seeing signs of improvement all around.
posted by Yury at 9:54 PM
1 Comments:
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