8/16: Almost There

Leo's blood test was good today, so we increased the dose of A10 to 205mL. Just 5mL to go until we hit the max! Then we focus on getting to the max with AS2-1. He's still taking the antibiotic (about a week left) and, of course, decadron. I spoke to Marilyn today, who was surprised we only have 3 bags of AS2-1 left, but will have some FedEx'd to us asap.

These silly home health companies can't help but send us more boxes with junk their nurses hardly use. We have so much saline and heparin syringes, as well as alcohol wipes, I think we're going to start selling them on eBay to raise some money! Speaking of home health companies and nurses, Marina and I almost jumped out of our respective skins today when the nurse showed up seriously late for Leo's blood draw, even though we called every few minutes to find out where she was. Before our first appointment, when I was arranging all this, I told her and her company, OptionCare, that we have a zero tolerance policy -- come hell or high water, whoever is assigned to us is coming on time because Leo can't be off treatment. She's outta here and a new nurse will be doing Friday's blood draw.

Leo was great this morning. He asked to sit in his little Batman chair and have breakfast in the kitchen along with Anna and Nina. This was so nice to see! The girls were like little flies and couldn't sit still for a second, while Leo laughed at them, probably thinking how he used to be like that and looking forward to it again in the future.