8/20: A Better Day

Today was better than yesterday for Leo. He sat on his favorite Batman chair this morning and had brunch with everyone. While most of us ate lunch, Leo started with breakfast and continued eating through lunch! He asked to go outside a few times and went for a walk in the stroller with Marina in the morning and to the park with Anna, Nina, the Grandparents, and I in the afternoon. The park visit didn't last long, but at least we got out a few times during such a beautiful day. We're realizing that Leo is basically on a roller coaster. Each bad day seems to be followed by a better day, so we aren't expecting a lot tomorrow.

The Clinic today suggested increasing Leo's dose of AS2-1 to 16mL. We're going to go up every few days by 1mL at a time now, instead of 2.5, until we hit 19mL. This antineoplaston makes him sleepy and the point is to keep him awake to ensure he drinks plenty to keep his sodium level normal.

Tomorrow is another Huber Needle change day. Last time is when the abscess was discovered near the port site. With the daily dressing changes and antibiotic cream, the abscess looks much better. At this point, there's a scab about the size of a dime. Although it isn't oozing much anymore, it seems we're going to have to continue to daily changes for at least another week or so to ensure it's fully healed.