8/22: Last Chance for OptionCare

I don't know whether it's OptionCare the company or if it's the nurses themselves, but we are almost at wit's end. I thought I was clear when I first arranged this: each day same time, same nurse. So far, we've met Candice, Gail, and Cindy, but tomorrow are going to meet Cathy because Candice is off, her sister Gail can't make it during the time we need, and Cathy is the one that's available. Tomorrow morning I'll be calling Michelle Reed, the nursing coordinator at OptionCare, with an ultimatum: each day same time, same nurse. I know it'll be difficult to find another company to do this, but at this point I'm thinking of calling independent home nurses and finding a set of 2 or 3 that live around us who work with children. What's more, they've been running tests on the wrong days. Dr. Szymkowski called today asking why a CBC wasn't done Monday, so she's rewritten lab orders for Mondays, Wednesday, and Fridays to ensure that these nurses get their acts together.

Leo seemed to be in a decent mood today, although he didn't sleep at all last night. The decadron 3 times daily is really doing a number on sleep for all of us, unfortunately. His dosage is now 210mL of A10 and 17mL of AS2-1. Symptoms are getting better, but they also aren't getting worse. We're just hoping things are getting better inside.