10/17: Leo is Home After 17 Days in the Hospital
Leo was in the hospital this time for 17 days, but is finally home. He has the NG tube and yesterday evening OptionCare delivered 2 cases of formula, an IV pole, a pump for the feedings, and other supplies. Today Seasons Hospice and Palliative delivered almost all the medications. Home nurse Candy, the one we've had since Houston, came over just before Leo arrived and stayed with us for almost 3 hours.
Leo's general condition hasn't changed much, which is exactly why we wanted him home (i.e. it was not getting any better at the hospital). It's scary to have him here, without all the beeping monitors, and we're extremely anxious because the number of medicines has doubled since before his hospitalization. He's still on:
Leo's general condition hasn't changed much, which is exactly why we wanted him home (i.e. it was not getting any better at the hospital). It's scary to have him here, without all the beeping monitors, and we're extremely anxious because the number of medicines has doubled since before his hospitalization. He's still on:
- Decadron (2mg 3 times daily)
- Nystatin (1mL 4 times daily)
- The pepcid/prevacid was switched for protonix (10mg 2 times daily).
In addition, Leo now has to take:
- Mylicon/simethicone (40mg 4 times daily) for gas pain
- Levsin (0.125mg 2 times daily) as an anti-spasmodic for the GI issues
- Miralax (8g 1 time a day) as a laxative/stool softener
With the NG tube, of course, he has formula feedings consisting of Peptamen Junior continuously at 60mL (that's about 2oz) per hour.
I spoke with Dr. Szymkowski from Houston today and in a few days we are going to restart Leo on antineoplastons. We want Leo to settle down and realize that he's back home and no one is going to poke or prod him (at least no one he doesn't already know). The antineoplastons will restart at a very low dose, nowhere near the max, but unfortunately his system needs to get readjusted -- to everything.
posted by Yury at 7:50 PM
1 Comments:
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