10/4: Dr. Dubinsky
Since Leo's dose of decadron was decreased to 7mg yesterday, he has become somnolent (tonight I easily convinced an intern at Lutheran General that I'm a doctor -- he was actually asking ME questions and I was telling him what to do!). This is probably also because of the fact that Leo has hardly slept since July. So he spent most of the day today asleep. He did wake up a few times, but not for long. This may actually be a good thing so that when he's out of the hospital we'll have to get him back on antineoplastons and he'll need all the rest he can get.
Leo's skin also looks much better than before. The infectious diseases people are doing a skin culture that should tell us something more specific Friday.
At home today Leo finally got a hospital-style adjustable bed and a low air loss mattress. I'm sure he'll be very excited about this. But it's already used -- Nina and Anna really enjoyed climbing all over it! Seriously, it should help the whole skin situation as well by letting air get to his back through the mattress, which comes with a pump that blows air through laser-drilled holes. It should also make him a lot more comfortable during the day and at night.
It's nearly impossible nowadays for me to post a note without ranting about decadron, so I won't disappoint. Today Dr. Ghai, the endocrinologist, spoke with Dr. Barbara and Dr. Weaver in Houston. They came-up with a plan to reduce Leo's intake. From now on, we can decrease the decadron by 1mg every 3 days. This means by mid-October, Leo should only be taking 3mg per day, at 1mg per dose -- some of the best planning we've heard! There is a consideration, at that point, to switch him to a much milder steroid (something I suggested even before speaking to the endocrinologist), such as hydrocortisone, but first things first. This is probably what's contributing to his sleepiness.
Leo's skin also looks much better than before. The infectious diseases people are doing a skin culture that should tell us something more specific Friday.
At home today Leo finally got a hospital-style adjustable bed and a low air loss mattress. I'm sure he'll be very excited about this. But it's already used -- Nina and Anna really enjoyed climbing all over it! Seriously, it should help the whole skin situation as well by letting air get to his back through the mattress, which comes with a pump that blows air through laser-drilled holes. It should also make him a lot more comfortable during the day and at night.
It's nearly impossible nowadays for me to post a note without ranting about decadron, so I won't disappoint. Today Dr. Ghai, the endocrinologist, spoke with Dr. Barbara and Dr. Weaver in Houston. They came-up with a plan to reduce Leo's intake. From now on, we can decrease the decadron by 1mg every 3 days. This means by mid-October, Leo should only be taking 3mg per day, at 1mg per dose -- some of the best planning we've heard! There is a consideration, at that point, to switch him to a much milder steroid (something I suggested even before speaking to the endocrinologist), such as hydrocortisone, but first things first. This is probably what's contributing to his sleepiness.
posted by Yury at 8:58 PM
1 Comments:
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